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Cylert (pemoline)

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  #16  
Old 02-23-11, 01:43 AM
Richard Richard is offline
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Re: Taking Pemoline

The business of filling prescriptions internationally is not something I've looked into before. A few years ago, the State of Wisconsin set up a program to assist people in Wisconsin on limited incomes with getting prescriptions filled by Canadian pharmacies. I suppose the legalities and practical difficulties of getting US prescriptions filled by a Japanese pharmacy for a customer in the USA -- if it can be done at all -- is one for an attorney who specializes in such things. I sure have no idea.
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  #17  
Old 02-26-11, 08:27 PM
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Re: Taking Pemoline

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Originally Posted by SfumatoPants View Post
In my research I found that it is actually still is being prescribed on what the FDA calls an "experimental trial". This trial began about a year (maybe 2) ago. There is one pharmacy on the East coast USA (New York I believe) that supplies prescriptions. The difficulty, it seems, is getting a doctor to participate in the trial. There is a great deal of paper work that needs to be completed which deters most doctors from participating.
It's actually classified as an Investigative New Drug (IND).

The one U.S. company that has been given permission to import Pemoline powder can sell it only to physicians, who in turn have to sell it directly to the patient.

For an IND, an incredible amount of paperwork is required. Add to that the fact that the doctor has to purchase the medication, and it's virtually impossible to find a treating physician who will agree to this. (INDs usually are for research physicians at educational or clinical facilities.)
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  #18  
Old 02-26-11, 08:30 PM
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Re: Taking Pemoline

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Originally Posted by Richard View Post
The business of filling prescriptions internationally is not something I've looked into before. A few years ago, the State of Wisconsin set up a program to assist people in Wisconsin on limited incomes with getting prescriptions filled by Canadian pharmacies. I suppose the legalities and practical difficulties of getting US prescriptions filled by a Japanese pharmacy for a customer in the USA -- if it can be done at all -- is one for an attorney who specializes in such things. I sure have no idea.
There are two things that prevent an American from getting a Pemoline prescription filled by a Japanese pharmacy.

1. Japanese pharmacies will honor only prescriptions from physicians who are licensed in Japan.

2. It now is illegal to import Pemoline into the U.S.
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  #19  
Old 04-04-11, 08:55 PM
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Re: Taking Pemoline

I am still working through the last of my methylphenidate prescription. I found that at one point or another, over the last few years, there were as many as 7 different posters residing in Japan. I have tried contacting each one but it seems that their accounts have gone dark. I'm posting this with key words, such as Japan, Tokyo, Osaka, ADD, ADHD,Pemoline, Betanamin, in order to try to attract someone who is or has lived in Japan and has gone through a similar experience to me.

Last edited by SfumatoPants; 04-04-11 at 08:56 PM.. Reason: spelling
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  #20  
Old 04-05-11, 12:46 AM
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Re: Taking Pemoline

Drat! I wish we could trade places. You can have my old prescription for methylphenidate that I still have laying around here somewhere, and I'll take yours for pemoline. It all just goes to show what a huge fake the big pharma industry is. Japanese people can take pemoline with no problem, while occidental people drop dead from liver failure at the very sight of it? Americans can wolf down methylphenidate with nary a care, but if a Japanese ingests so much as a nanogram, it's immediently fatal? Give me a break!
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SfumatoPants (04-11-11)
  #21  
Old 08-02-11, 07:49 PM
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Re: Taking Pemoline

I am years late in writing this and probably will never be able to find if someone answers this--but --there goes.... I am ADD and have narcolepsy plus I have Cfids with fibromyalgia---CYLERT was the only med. that really helped me, but I had to take a very high dosage for it to work...and I had blood draws every other week---with no problems for years. I was sick when they stopped making it---I was able to organize things , it helped with strength and stamina, and even helpedwith the severe pain ----my handwriting was much better---and I could focus on the task at hand. now I am on 3 different physostimulants and at least I am not asleep all day , but I still can't "get it together". My doctor would prescribe it for me if I could get it somewhere. Over the past few years when others have written about it , has anyone learned if it is being made in the USA? I am not getting any younger and it would be wonderful to get my life back lol Cookie K
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  #22  
Old 12-07-11, 09:12 PM
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Re: Taking Pemoline

It has been a while since I last responded to this thread, and given the interest that some seem to have regarding pemoline, I thought I should post an update.

I have now been in Japan for about 10 months and I have successfully been receiving treatment for the last 8.
I'm sorry to disappoint those who want to know, but I am not currently being prescribed Pemoline. I am taking Concerta.
Pemoline is prescribed in Japan, but given the requirement of having to undergo a monthly blood test, combined with the restriction that all psychiatric medication (Only psychs can prescribe for ADD, anxiety, depression, bipolar, etc... in Japan) prescriptions are only 1 month in duration, it is often though to be more trouble than it's worth - taking pemoline would involve 2 required medical appointments per month, one with your prescribing psych and one with a medical doctor for the blood test.
For this reason Concerta is prescribed first.
I couldn't honestly tell the psych that I was having any problems with the Concerta, so on it, I have stayed.
To those of you outside of Japan wanting to take Pemoline, please lobby your respective health authority. You cannot obtain Pemoline from Japan unless you live here and are registered on the nation's national health plan.
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  #23  
Old 01-20-12, 04:16 AM
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Re: Taking Pemoline

http://www.rad-ar.or.jp/siori/english/kekka.cgi?n=1476
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  #24  
Old 01-22-12, 02:38 AM
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Re: Taking Pemoline

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Originally Posted by SfumatoPants View Post
.
To those of you outside of Japan wanting to take Pemoline, please lobby your respective health authority. You cannot obtain Pemoline from Japan unless you live here and are registered on the nation's national health plan.
I tried calling the FDA and someone actually called me back. Long story short. Forget it, it isn't happening. Pemoline has been consigned to history, in part because it went generic there toward the end, so its not worth the trouble for big pharma to ressurect it. Those of us who were diagnosed ADD in the 90's may have gotten a prescription for it, and for some of us, pemoline worked amazingly well. But I don't think we are a big enough group to form an effective lobby, and fewer and fewer people know anything about pemoline as the years go by.
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  #25  
Old 01-23-12, 10:57 PM
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Re: Taking Pemoline

I now have an acquaintance here in Japan who is currently taking Betanamin for ADHD, and their opinion of the drug is somewhat less than glowing. They describe the effects as "non-existent", to periods of "caffeine-like" hyper activity.
Perhaps the fond memories of this drug by some on this board are just that, memories made better than the reality by the fog of time?
In any case, after talking to them about their experience I'm much more satisfied with my decision to stick with the Concerta. I had been thinking for quite a while that "maybe I would be better off if...", but no longer.
As Possum said, Pemoline may be consigned to the scrapheap of time, but there are many new medications available, based on the latest science. Living in Japan it's unlikely that I will see any of these, any time soon. I can't even look forward to the possibility of finding something that could work better for me. I'm on a one trick pony here, and if that pony dies...
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